Global Patient Voices Project
Real people. Real stories. Real journeys.
The Global Patient Voices Project is a growing library of short videos from patients and caregivers around the world.
This is not corporate content, this is lived experience, shared in real voices, to help others feel less alone, make better decisions about research, and help clinical innovation stay grounded in real life.
Why we are doing it
01
Helping people make decisions about clinical trials
It is hard to decide whether to take part in research when you are unwell, overwhelmed, or trying to protect a loved one.
Hearing real stories can help people:
- feel less alone
- understand what taking part in clinical trials can be like
- make clearer, more confident choices
02
Helping innovators hear the reality behind the science
Biopharma innovation changes lives, but it can only truly land if it reflects how people actually live.
These stories help sponsors, researchers, and trial teams better understand:
- the daily burden of living with a condition
- the emotional reality behind participation
- what makes research feel possible, or impossible
Watch the stories
Rocio π¦π·β
Multiple sclerosis may challenge me, but it does not define me
Mary πΊπΈ
Tricuspid valve disease, hospice survivor and champion of others.
Luciano π§π·
Moving forward following prostate cancer.
Cristina π¦π·β
Atrial fibrillation and multiple other arrhythmias controlled by a pacemaker and drug therapies.
Jacqueline π΄σ §σ ’σ ³σ £σ ΄σ Ώ
Jacqueline living with primary biliary cholangitis, diabetes and fibromyalgia. Stuart has been beside her every step of the way.
Carla π¦π·β
Resilient today, hopeful tomorrow, thriving with multiple sclerosis.
Colette π΄σ §σ ’σ ³σ £σ ΄σ Ώ
Diagnosed with primary biliary cholangitisΒ in 1994. Driving awareness & change ever since.
Jamie π΄σ §σ ’σ ³σ £σ ΄σ Ώ
A father of a 7-year-old boy living with Duchenne muscular dystrophy. Relentless advocate.
Susanna & Jorge π¦π·β
Jorge lives with diabetes, Susanna has been by his side every step of the way
David π¬π§
Cowden Syndrome will not stop David raising awareness of the impact on mental health.
Jessica π¦π·β
More than Multiple Sclerosis: bold, brilliant and unstoppable.
Renata π§π·
Lung cancer fighter: brave, steady, still here
Connie πΊπΈ
Two rare disorders: Factor VII deficiency and Pemphigus Vulgaris.
Three chronic conditions: diabetes, kidney disease and hypertension.
Suzanne π¨π¦
Thriving after a stroke, supporting those who have recently walked this path.
Claudia π¦π·β
Living withΒ SjΓΆgrenβs syndrome with courage, hope, and humour.
Fernando π¦π·β
Living with multiple conditions, Fernando shares his personal challenges with clinical trials.
Trishna π¬π§
Living with multiple conditions. Advocating for the many.
Caleigh πͺπΈ
Two double lung transplants and on a mission to help people with cystic fibrosis. Passionate advocate for the many.
Share your story
We would love to include your voice.
What to talk about
You can speak about any of the following:
- who you are and where you are from
- your condition and what life looks like
- your experience of healthcare and research, including clinical trials if relevant
- what you wish others understood
And as your final words, please share one word that comes to mind when you think about your lived experience.
How to film it
- 1 to 3 minutes is ideal
- a phone camera is perfect
- film somewhere quiet with good light
- speak naturally in your own language
- no script needed
Submit your story
- Thank you for helping us build a library of humanity.
Upload your video below.