Know Your Rights
What you are entitled to expect — informed consent, privacy and data ownership, ethics oversight, fair treatment, and how randomisation and placebo really work. Written so the answers are in your hands before anyone asks you to sign.
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Information Overload: The Hidden Barrier
Read more: Information Overload: The Hidden BarrierShows how dense consent forms and jargon-heavy materials overwhelm potential trial participants, and recommends plain language, visuals, and staged information delivery to…
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Why Overcomplicate? Breaking Down Medical Language in Trials
Read more: Why Overcomplicate? Breaking Down Medical Language in TrialsExplains common clinical trial terms like informed consent, placebo, randomization, and endpoints in plain language, arguing that simple communication builds trust, especially…
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Fairness Must Be Built In from Day One
Read more: Fairness Must Be Built In from Day OneArgues that equity and inclusion must be designed into trials from the start, through community partnerships, flexible protocols, financial support, and transparency,…
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Trust, Transparency and Today’s Savvy Trial Participant
Read more: Trust, Transparency and Today’s Savvy Trial ParticipantAdvises trial teams on earning trust with today’s well-informed participants through transparency about funding, risks, and design, plain language, and treating patients…
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Trial Progress Updates: How Much Is Enough?
Read more: Trial Progress Updates: How Much Is Enough?Argues that regular, plain-language progress updates should be planned into every clinical trial, with practical guidance on frequency, detail, consistency, and post-trial…
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“I’m Not a Guinea Pig!” Changing the Trial Narrative
Read more: “I’m Not a Guinea Pig!” Changing the Trial NarrativeDebunks the guinea pig fear and last-resort framing of clinical trials, explaining safety oversight, ethics protections, and why trials can be a…
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RCTs and Ethics When Hope Faces a Placebo
Read more: RCTs and Ethics When Hope Faces a PlaceboA first-person reflection on the ethical tension of placebo-controlled trials for life-threatening conditions like PBC, questioning whether good science is always good…
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Making “Patient First” Mean Something Beyond Consent
Read more: Making “Patient First” Mean Something Beyond ConsentChallenges the industry to make patient-first more than a slogan, arguing consent is an ethical minimum and real patient-centricity means co-design, transparency,…
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Winning Hearts Without Compromising Ethical Standards
Read more: Winning Hearts Without Compromising Ethical StandardsArgues that ethical, transparent, pressure-free outreach outperforms hard-sell recruitment tactics, covering respectful communication, community partnership, flexible patient-focused design, and post-trial follow-up.
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From Passive Participants to Active Decision Makers
Read more: From Passive Participants to Active Decision MakersCharts the shift from patients as passive trial subjects to co-creators, covering shared decision-making, plain-language materials, diverse patient leadership, and technology that…