Know Your Rights
What you are entitled to expect — informed consent, privacy and data ownership, ethics oversight, fair treatment, and how randomisation and placebo really work. Written so the answers are in your hands before anyone asks you to sign.
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Designing Trial Information Around Patient Decision Making
Read more: Designing Trial Information Around Patient Decision MakingArgues trial materials are built for regulators rather than readers, and sets out sequencing, layering, plain language and comprehension checks as ways…
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When Trial Speed Becomes Patient Pressure
Read more: When Trial Speed Becomes Patient PressureWarns that aggressive enrollment timelines rush patients through onboarding before they truly understand participation, and shows how slower, staged education and wellbeing…
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“What Happened to My Data?” The Post-Trial Silence Patients Can’t Forgive
Read more: “What Happened to My Data?” The Post-Trial Silence Patients Can’t ForgiveUses a patient story and the statistic that only about 20% of participants ever receive results to argue that returning clinical trial…
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“I Felt Like a Number, Not a Patient” What the Enrollment Experience Gets Wrong
Read more: “I Felt Like a Number, Not a Patient” What the Enrollment Experience Gets WrongUses a patient’s screen-fail story to expose how cold, inefficient enrollment and dense consent forms erode trust, urging pre-screening, humane communication, plain-language…
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Silent Absence Of Research In Treatment Journeys
Read more: Silent Absence Of Research In Treatment JourneysAn empathetic look at how research is rarely presented as part of the treatment pathway, what patients are never told when enrolling,…
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Safeguarding Dignity Throughout The Recruitment Process
Read more: Safeguarding Dignity Throughout The Recruitment ProcessFrames recruitment as a continuous commitment to patient dignity from first contact through informed consent, proposing community-based and choice-driven alternatives to high-volume…
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Protecting Privacy In Online Research Conversations
Read more: Protecting Privacy In Online Research ConversationsA compliance-focused guide to protecting patient privacy when using social networks for research engagement, covering lawful data use, transparency, data minimization, and…
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Unreasonable Hospitality Inspires Self-Advocacy
Read more: Unreasonable Hospitality Inspires Self-AdvocacyApplies the ‘unreasonable hospitality’ concept to clinical trials, arguing that above-and-beyond care makes patients feel safe enough to self-advocate, which behavioral science…
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How Randomization Feels Different to Patients
Read more: How Randomization Feels Different to PatientsExplores the emotional gap between randomization as scientific fairness and how patients experience it as loss of control, offering communication strategies that…
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Who Owns Patient Data?
Read more: Who Owns Patient Data?An ethics-driven argument that patient data is an extension of identity, calling on researchers to treat registration as a trust exercise, return…