Medical Conditions
Plain-language guides to the conditions people search for most — what they are, how they are treated, and what living with them actually involves. Written for the moment just after a diagnosis, when most other sources assume you already know the vocabulary.
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ITP Clinical Trials: How to Find the Right Study for You
Read more: ITP Clinical Trials: How to Find the Right Study for YouChoosing to explore a research study is not a sign that your current treatment has failed. It is a deliberate step toward…
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Understanding Factor VII Deficiency Clinical Trials
Read more: Understanding Factor VII Deficiency Clinical TrialsWhat if the path to managing a rare condition felt less like being an experiment and more like a partnership? Living with…
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Navigating von Willebrand Disease Clinical Trials
Read more: Navigating von Willebrand Disease Clinical TrialsIt takes an average of six to ten years for a person to receive a von Willebrand disease diagnosis after their symptoms…
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Acute Myeloid Leukaemia (AML): Navigation and Treatment
Read more: Acute Myeloid Leukaemia (AML): Navigation and TreatmentThe American Cancer Society estimates that approximately 22,720 people will receive a diagnosis of leukemia (Acute myeloid leukaemia (AML) in the…
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How Pharmaceutical Companies Are Tackling Rare Diseases
Read more: How Pharmaceutical Companies Are Tackling Rare DiseasesPharmaceutical companies are increasingly investing in rare disease research.
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Living With a Rare Disease: Finding Your Way to Research
Read more: Living With a Rare Disease: Finding Your Way to ResearchRare diseases present unique challenges on the path to diagnosis and treatment. Clinical trials offer hope, and your participation helps advance research…
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Achondroplasia: a plain-language guide
Read more: Achondroplasia: a plain-language guideAchondroplasia explained in plain language: what it is, how common it is, symptoms, diagnosis, treatment, support, and how to think about a…
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Wilson’s disease: a plain-language guide
Read more: Wilson’s disease: a plain-language guideWilson’s disease explained in plain language: what it is, how common it is, symptoms, diagnosis, treatment, support, and how to think about…
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Von Willebrand disease: a plain-language guide
Read more: Von Willebrand disease: a plain-language guideVon Willebrand disease explained in plain language: what it is, how common it is, symptoms, diagnosis, treatment, support, and how to think…
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Type 2 diabetes: a plain-language guide
Read more: Type 2 diabetes: a plain-language guideType 2 diabetes explained in plain language: what it is, how common it is, symptoms, diagnosis, treatment, remission, and how to think…